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July 2-6, the first camp dedicated to the families affected by Alopecia was held in the village of Bartoniai, Lithuania. It was first big gathering of almost 40 people since 2010 when the Alopecia Association of Lithuania was established.
They had a chance to share their stories about Alopecia, a rare condition of hair loss which affects one to two percent of the population. While children with Alopecia are usually shunned away from society, in the camp, they played together without worrying about being any different. Many parents haven’t seen their children so relaxed and happy in a very long time. No one had to worry about wearing a hat or a wig. The children were inspired to hear the stories of the adults with Alopecia, and were touched to see more children who look just like them. They ran through the fields, and jumped in the pond with no head coverings. Even though the camp was meant for families touched by Alopecia, there were others that came to support them, to help with the integration of the children into society, to spread awareness about the condition. The camp was sponsored by the KFF as part of the continuous awareness about Alopecia grant.